Local mom sadly loses baby, Charlotte, to rare syndrome: ‘Our whole world flipped upside down’

Nicole Wurl of North Tonawanda experienced something recently that no mom should ever have to. She lost her baby girl, Charlotte, before she even had a chance to live. Now she’s sharing her story to bring awareness to other families.

“Our whole world flipped upside down we lost our little baby girl at about 15 weeks.

Charlotte had cystic hygroma [a group of cysts found mostly in the neck] and Turner syndrome [arare chromosomal abnormality in females] with severe swelling around her body. She put up a good fight, but her body was to little to fight off the sickness.

I couldn’t believe something like this could ever happen, especially after giving birth to three healthy children. There is not enough awareness on these things. Had my baby only had one of these problems, she could have made it.

It has been the longest month of my life finding out something was wrong with my child and I couldn’t do anything to fix it. It’s not like little falls when my kids need Bandaids. I couldn’t put a Bandaid on her.

She was a little fighter and I felt her move early on. I always knew she was there until one day I didn’t feel her move anymore. I knew something else was wrong. Our sweet princess was gone and it was the saddest day of my life.

Having to tell her siblings that mommy has a baby in her tummy, but she’s sick and you won’t ever be able to meet her was heartbreaking. It really upset my oldest child. He has been strong for himself, but he tells me all day ‘Mommy, I hope you feel better soon.’

My surgery to birth my little girl was such a sad, emotional day for me and for all of us really. I could hardly move and my body feels lifeless. It’s so weird going to the hospital to have a baby, but never bringing her home. It’s heartbreaking and I try to find comfort by saying she’s not sick anymore – she’s free. I will see her again one day, but until then I wonder what she would look like straight hair or curly hair, tall or short (likely short because most Turner syndrome children are small). I will wonder what her personality would have been. I wonder what her sweet baby smell would of been like…her little hands and feet. But I had to say goodbye. My little butterfly, fly high. Stay strong.

Charlotte Anne – June 21, 2018

Photos by Danielle Sullivan Photography.

Turner Syndrome occurs in between one in 2,000 and one in 5,000 females at birth. There is no cure. 

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